Today is M.E Awareness Day. M.E (sometimes known as Chronic Fatigue Syndrome or C.F.S) is a physical illness that I’ve lived with for around 12 years. It’s a relapsing and remitting illness but the symptoms, which include fatigue, exercise intolerance, brain fog, headaches and muscle pain are always there to some degree. There is no treatment for M.E and it’s often unpredictable.
For example, over the past few days I’ve been experiencing quite a bad relapse of my symptoms. It’s not the worst I’ve ever known but it’s the worst in a long time, and has left me with very bad headaches, dizziness, worsened fatigue and muscle aches.
Looking at a screen doesn’t help too much either so I’m trying to write this as quickly as possible. I’ve not been doing anything out of the ordinary that could have triggered this and I haven’t been under an increased amount of stress so it’s been a bit of a surprise.
One thing about M.E/C.F.S is that it’s an invisible illness so in a room full of people it’s unlikely that you’d be able to tell if any of them has M.E. And even if you did identify them they might still appear to be perfectly OK. They might not look tired or weak or in pain but you’ll probably only see a snapshot of their day/week.
A lot of people with M.E are able to be out in the world but not always on a regular basis. Usually a single day/afternoon of socialising will have taken a lot of planning and will be followed by a day or (usually) more of recovery time. There are also a number of people who have such a severe form of this illness that they are either house-bound or bed-bound.
Last year I wrote about a campaign called Millions Missing, which is a silent protest to raise awareness about M.E/C.F.S and to call on governments to fund useful research into a cure. That protest is happening again today all around the world and you can read about it here.
Today in London for the first time, the fountains in Trafalgar Square will light up blue to mark M.E Awareness Day, so if you are in that area this evening I think there will be people there providing information.
If you have never heard of M.E or don’t know much about it, please take a few minutes today to find out a bit more and share this post with others to help spread awareness of the illness on behalf of the millions of people in the world whose lives are affected by M.E. every day.